Outreach Clinic

I am sorry I have not been around….in fact I haven’t even read blogs for a few days, I am glad you all stuck around without me. Between all the extra curricular activities we have been doing I just can’t keep up with everything … like Greys Anatomy…did you see it last night? It was AWSOME!!!

The Talent Show, Friday was a hit!!! The girls found the true meaning of the “Show must go on.” Byrd’s partner for the talent show was puking back stage before the evening show. They bumped their skit ahead in the program to take advantage of the break in HARFING. They made it through, with no barf, and the crowd loved it.

I went to see “Hoot” with the Junior Girl Scout on Saturday. I HATED sitting in the dark while LA was enjoying the heat! “Hoot” was good but don’t waste your money seeing at the theater…..and it made me enjoy the afternoon sunshine, all the more. I made time for the first bike ride of the year with Byrd and Rose (who did not enjoy it). .. and LooLoo’s birthday was a blast it was nice to see some of the Wasilla crowd. I had a good Mothers Day, I got some work out of a few kids. I tried to call you Mom, TWICE but the phone was busy. You guys need call waiting and voice mail!

Tay, JD, and I spent Mothers Day morning, following funny guys in red hats. Now I remember why we quit going to their out reach clinics….

First of all … the Physical Terrorist….Oh how they rub me wrong…I hate meeting new PT’s….this PT we will just call her MARY (every bad PT, is named Mary), came into the exam room first. She asked us questions about Tay’s abilities. After very few question about Tay’s history, treatments, and gross motor skills she started asking about fine motor skills…to be specific…keyboarding skills. I told her we have been working on this for YEARS, in fact since before Kindergarten, and that Tay is doing just fine and that we do not have any major concerns in this matter. In fact Tay told her the last typing test she did was 15 words a minute, with no errors, better then me. The PT replied that she would probably test about the same. After "Mary" was done she brought in the rest of the team, the Doctors and Occupational Therapist. ..in the 5 minutes she was gone, she forgot what we talked about …. I am not sure who she was listening to, but it was NOT Tay, JD, or ME! “Mary” the PT proceeded to tell the OT that Tay could not keep up with her class in writing or typing and that we needed assistance in the matter…WHO WAS SHE TALKING ABOUT?....Does she believe we have sitting on our ASSES…Does she think that we have NOT been through ALL of this before…Does she think we have not seeked ANY medical treatment for the last 6 years?....Does she think I am new to Assistive Technology?....Does she NOT realize that we have been doing her's and the OT’s job for 12 YEARS and that any idiot can do it!!!!...... We want to talk SURGERY and getting her back on her feet...NOT KEYBOARDING SKILLS!!!! That PT almost had a MOM jumping down her throat.

Secondly…Last time we saw Shriners (2000), we were asked about joining their Gait Clinic and possibly using Botox in her treatment. Tay was walking and we wanted to “loosen” up some muscles, but because she was walking they patted me on the back and told me to continue with what we were doing …Physical Therapy…have I told how much I hate PT’s? After that I figured I was on my own and searched out another Doc that would help us out. I want to thank Botox Doc for listening to me, Botox is what has kept her on her feet and out of surgery for the last four years.

So in conclusion of this outreach clinic… we are still waiting… waiting for a phone call to tell us when we will fly south to participate in their Gate Clinic…. because she currently isn’t walking she is now a prime test subject for their Motion Analysis. The way I see it we should have done this study 6 years ago when she still had a GAIT!

Anyway, this will be a 24 hour red-eye trip for a 4 hour test…to tell us that we need to wait… until they have room in their schedule to do a surgery that four doctors have already recommended ….I HATE this waiting game… But don’t get this rant wrong…..I am thankful they want to test before they cut…and I am thankful for what Shinners does, it is just a frustrating system to navigate through.